Avoiding Health Disparities When Collecting Patient Data

Determining barriers and facilitators to collecting electronic patient-reported data

Full Project Name:Avoiding Health Disparities When Collecting Patient Data for Clinical Care & Pragmatic ResearchPrinciple Investigator:Bradley H. Crotty, MD, PhD, FACP, MedicineCo-Investigator:Onur Asan, PhD, Medicine; Joni Williams, MD, MPH, Medicine; Rebekah Walker, PhD, Medicine; Joan Neuner, MD, MPH, MedicineAward Amount:$200,000
Award Date
January2018
Project Duration:24 months

Project Description Narrative:


Providing care that is respectful of and responsive to individual patient preferences, needs, and values is a key pillar of the National Academy of Medicine's vision of the 21st-century health care system. Patient-centered care encompasses shared medical decision-making based on values, improved trust and connectedness to clinicians, access to appropriate care, and assistance with follow-through in meeting health goals. As care transforms from episodic office-based visits toward more continuous management, with larger multidisciplinary teams, it is critical that care teams have access to data about patients' perspectives, values, and other contextual considerations to tailor conversations and clinical decisions.

Given the promise that improving patient-centered care offers for decreasing disparities, more information is needed to understand perspectives and perceptions of new systems of care. The goal of this project is to determine the barriers and facilitators to collecting electronic patient-reported data (PatientWisdom) and whether adoption and results of use differ by race.

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